Fibromyalgia and Paleo

I was diagnosed with fibromyalgia about two and a half years ago. Looking back I've had it for at least ten years. So what is it?

From the National Fibromyalgia Association website:

Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause.

Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities.

The most common way to diagnose someone with FB is check for tender points. There are up to 18 of them. You need to have at least 11 to be diagnosed. I have 16 I think.

That's very general. I want to focus on what FB looked like in my case. And I must admit, I have a very moderate level of symptoms, nothing like some other persons.

PAIN
All over. Everywhere, but you can't pin point it. Spreads through legs, belly, arms. Sometimes sits in one limb only, sometimes hits everything at once. You try changing positions, lift the legs, not move, move... nothing helps. You can just try to sit as comfortable as possible and wait till the worst is over. Then there is this "I have a flu with no fever" feeling. As if you were bruised on every inch of your body, every touch hurts. Putting on underwear hurts. Using bathroom hurts. Touching hair hurts, because your skin hurts. That usually holds for three days. Then there are joint pains. Sometimes random, sometimes as an outcome of long walk, standing for too long, wrong shoes, too hard surfaces or I don't eve know what.
When I finally started to do some workout over the summer (I am a teacher, so I had more time then), my knees would scream, not only during the workout but even in between. After a few days they were hurting all the time. My doctor told me that it is what it is, gotta get used to it.

FATIGUE
Not just tired... but the absolute physical and mental exhaustion. Too tired to prepare a meal, to clean the house, to make the bed. Too tired to visit friends or invited anyone over. Too tired to do shopping, check out a nice place or keep up with a hobby. Too tired to even begin about working out. Too tired to finish up some documents from work or even answer emails to friends.
I used to come back from work, and was sitting from around 5pm to 10pm in front of my laptop, not being able to do anything. I ate whatever I could find when I was so hungry it overcome the fatigue. I was so tired it was difficult to get up and get prepared for bed. Too tired to understand what I was reading on the internet, so I usually was surfing through home decor blogs - pictures only, easy. I was too tired to focus on a book or even watch a movie. I was vegetating.

SLEEP
I could sleep for ten hours and wake up tired. I wake up multiple times during the night for a split second. My body cannot fall deep enough to get into the most important, restorative phase of the sleep. Sometimes I fall asleep without any problems, sometimes I have a hard time with that. On free days I may also take a nap during a day. I aim for 7.5-8h during a weekday, 9h on weekends. If I sleep less than 6h I feel sick, have bad headache and simply remind a zombie.

OTHER
I did have problems with my bowels, and I am getting bad headaches, with occasional really severe ones. I have had problems with concentration, clear thinking and memory. I still struggle with depression and really bad anxiety.


TREATMENT
My rheumatologist has tried various meds and supplements. Nothing worked. No CoQ10, no lyrica, no other. He suggested stretching, exercising (promising that it was supposed to get better after a while of bad pain), and "healthy diet". To be honest, the only advice he gave me that worked, was getting a body pillow!

So why am I writing most of the symptoms in past tense? Well, because they are things of the past for me. Enter Paleo.

I've been eating low-carb since about January, almost-paleo since March-April. Completely gluten-free since July. Even without cutting all gluten the majority of FM symptoms either lessen or disappeared.

PAIN
I have very rarely the "random" muscle or joint pain. I do still have aches, especially after running long errands and/or having to stand for a longer time. The recovery still takes a while.
I am working out, strength, sprints etc., with no joint pain whatsoever! I do lunges, squats and my knees sing the songs of praise.
I still wake up stiff in the morning sometimes, but it takes less time to get moving.

FATIGUE
Gone. Can you believe it? I am a new woman! I come back from work and I have still energy and will to do stuff. I do workout or cook dinner and/or lunches for work, I clean around the house and whatever else I feel like doing. I am able to read and understand what I am reading even after 6pm. I have my life back. It's unbelievable. I think this part of the recover is the most beneficial. I do cook more on Paleo - but now I have time to do it!

SLEEP
Still working to get it better.

OTHER
Can't remember when was the last time I had any GI issues. My focus, ability to concentrate on a task and general mental ability improved dramatically. Anxiety and depression got better, but they need more time for full recovery. I take medicine for both of them.

All of it only thanks to cutting grain, sugar, processed foods, vegetable oils and other crap of that kind. I eat a lot of animal protein of many varieties, fish, good fats like coconut oil and butter, a little bit of cream or cheese, some green veggies and occasional fruit or chocolate. That's it. That's all the medicine I needed!

This post is part of "Paleo Rodeo" @ Modern Paleo!